By Brian S. Carter MD FAAP, Marcia Levetown MD FAAP FAAHPM, Sarah E. Friebert MD FAAP FAAHPM
There are few issues requiring extra services, delicacy, and compassion than taking good care of an toddler, baby, or younger grownup with a life-limiting situation. Written by means of top researchers, clinicians from suitable disciplines, relations, and advocates, this sensible advisor presents pros all for pediatric palliative and end-of-life care with finished details in one volume.
Thoroughly up to date and elevated, this variation contains chapters addressing the original demanding situations dealing with little ones with HIV/AIDS and their households, care in domestic and ICU settings, tough decision-making procedures, and the significance of conversation with the kid and relations, in addition to thoroughly new chapters on religious dimensions of care and academic and advocacy tasks. meant for basic care physicians, pediatric practitioners and experts, domestic care and hospice group of workers, pastoral counselors, and affected households, the ebook comprises resource and reference fabric and functional, hands-on tips.
With contributions from a world team of professional educators, clinicians, and fogeys, this e-book takes a really interdisciplinary method of pediatric palliative care, offering top practices, transparent guideline, and the most recent info and examine for a person considering pediatric palliative and end-of-life care.
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Additional info for Palliative Care for Infants, Children, and Adolescents: A Practical Handbook
Example text
He remains deeply comatose; a recent MRI confirms the irreversibility of his condition, showing severe encephalomalacia (large cavities in the brain, representing loss of brain tissue) caused by the hypoxia that occurred during his accident. Alex continues to receive ventilatory support and medically administered hydration and nutrition. ” The attending physician in the intensive care unit has met regularly with Alex’s parents to discuss his condition, and again she approaches them to discuss his prognosis and care plan.
Bereavement Care Published evaluations of bereavement counseling programs for surviving parents and siblings are few and of limited methodological rigor. A survey of parents of infants who died after discontinuation of interventions in NICUs in Scotland found that follow-up meetings between attending physicians and parents occurred within 2 months of the death in only 46 percent of one case series (McHaffie, Laing, and Lloyd, 2001). , 2001). , 2007). Future Work With their systematic review of the medical literature complete, the team continues to design their palliative and end-of-life care services with a firmer sense of the characteristics of dying children and the health services they receive, but also a keen awareness of how little is known in this realm.
Keeping these two types of problems in mind can be helpful in identifying the factors that are present in various ethically problematic situations. When one is faced with an ethical problem, the ethical values discussed above should be part of the thought process in deciding how to handle the situation, as illustrated in the next section, where the resolution of specific types of ethical problems is considered. Main Types of Ethically Problematic Situations Through the following fictional clinical vignettes, various types of ethically problematic situations are considered that are often encountered while caring for children with life-threatening conditions.