By Konstadina Griva, Aleksandra Luszczynska, Val Morrison Tracey A. Revenson
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Extra resources for Caregiving in the Illness Context
The instrument has been validated among caregivers of older persons (Malhotra, Chan, Malhotra, & Østbye, 2012) and cancer patients (Grov, Fosså, Tønnessen, & Dahl, 2006). 0005 Caregiving in the Illness Context subjective well-being, and physical health specifically as a result of providing care. It can be administered as self-report or as an interview and has had psychometric testing, as described in Deeken et al. (2003). Conclusion Several key conclusions can be drawn from review of caregiver outcomes.
2015). , 2015). It would be important to know whether patients and their caregivers show agreement with respect to these issues. This is most salient in the context of advanced illness or the end-oflife phase. Some patients may want to stop treatment, as they perceive quality of life as more important than survival time. Their caregivers, on the other hand, may fear the patients’ death and want the patients to stay with them as long as possible. In line with this, one study showed that the percentage of family caregivers who preferred life-preserving treatments was higher than the percentage of patients with terminal cancer who preferred such treatments (Tang, Liu, Lai, Liu, & Chen, 2005).
At the same time, the disclosures of partners might have been perceived as burdensome by patients, potentially because their partners’ concerns reminded the patient about their uncertain future. , 2008). , 2006). , 2007). , 2011). A study by Langer et al. (2009) is especially interesting as it was carried out in the context of hematopoietic stem cell transplantation, in which the partner is required to take upon an extensive caregiving role. The study showed that both patients’ and their partners’ protective buffering behavior was associated with the motivation to protect the other (and the self).