By Shubhangi Vaidya
The e-book explores the lived truth of parenting and taking good care of kids with autism in modern city India. it truly is in line with a qualitative, ethnographic research of households of youngsters with autism as they negotiate the tough terrain of settling on their baby s incapacity, acquiring a prognosis, getting access to applicable prone and their on-going efforts to come back to phrases with and make experience in their baby s specified subjectivity and mode of being. It examines the gendered dimensions of coping and care-giving and the differential responses of dad and mom, siblings and grandparents and the community to this complicated and infrequently super hard .
The ebook tackles head at the sombre query, what is going to occur to the kid after the oldsters are long past ? It additionally severely examines the position of the nation, civil society and felony and institutional frameworks in position in India and undertakes a case learn of motion for Autism ; a Delhi-based NGO organize by means of mom and dad of youngsters with autism. This ebook additionally attracts upon the writer s personal engagement together with her baby’ s incapacity and hence lends an authenticity born out of lived event and in-depth figuring out. it's a worthwhile addition to the literature within the sociology of the family members and incapacity reviews.
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Additional info for Autism and the Family in Urban India: Looking Back, Looking Forward
3 Re(de)ﬁning the Category Feinstein (2010) writes that one of the important developments in the 1980s was the conceptualization of autism as a ‘spectrum’ condition. The pioneering British autism researcher Lorna Wing, herself the mother of an autistic child, and her colleague Judith Gould in 1979 published the ﬁndings of their ‘Camberwell Study’—a study of children with special educational needs in the London Borough of Camberwell. 6 The History of Autism: Evolution … 31 imagination which resulted in a narrow range of repetitive activities and behaviour.
The term ‘autism’ which is derived from the Greek root ‘autos’ which means ‘self’ was earlier used by the Swiss physician Eugene Bleuler to describe the behaviour of patients then diagnosed with schizophrenia who were completely absorbed in their internal worlds and disconnected from their environment and people around them. Bleuler thus used the term as an adjective to describe a symptom rather than as a distinct ‘syndrome’, which is how Kanner deployed the term. So, was ‘autism’ a variant or sub-set of schizophrenia?
Social and historical forces influence the directions that family research takes. The passing of pro-disabled legislation, lobbying for rights, expansion of inclusive education and provision of medical and educational and support services for disabilities of every description has been a feature of Western societies over the past few decades. Family research has moved away from family pathology to family adaptation, life-course development and activity settings. , continue to be followed (Vaidya 2015).